Sarah‘s story
“It’s been a long journey. I dealt with this for 5 years before I received my official diagnosis, and I had no clue what was wrong.”
Sarah is living her best life with generalized myasthenia gravis
When Sarah started experiencing muscle weakness years before her gMG diagnosis, she was forced to give up quilting and teaching classes. Since starting VYVGART, she has resumed hobbies and built new relationships.
How did gMG change your life?
It’s been a long journey. I dealt with this for 5 years before I received my official diagnosis, and I had no clue what was wrong with me. I had to stop quilting and teaching classes. It got to the point where I couldn’t do sewing machine repair anymore. It was very frustrating not knowing what was going on. My speech was affected. When I was teaching a class it was hard to get the words out. The worse it got, the more frustrated and stressed I got. It really really hit me. I had little control of my muscles. It was a very sad, stressful time for me because I’ve always been so active.
Why did you decide to try VYVGART?
My doctor told me it was a very new drug and that he thought I was a great candidate. I was at the point in my life where I had to do something, I just couldn’t go on the way it was.
“There are days when I’m very active when I need to go to bed a little earlier than normal. But it’s just a whole new life for me.”
What was it like starting on VYVGART?
We did 4 weeks on, 4 weeks off. Scheduling has been no problem, the nurse comes to my home and it takes about 3 hours for the infusion and then she’s on her way and I’m off to a busy day. The second 4 weeks were fabulous. I did super, I felt like a completely different person.
How has your day-to-day life changed?
There are days when I’m very active, when I need to go to bed a little earlier than normal. But it’s just a whole new life for me. I’m back into quilting. I also have my business. I hand dye wool for wool appliqué and rug hooking.
I’ve met this fantastic gentleman, and we have been seeing each other pretty regularly and I’m just having the time of my life. We go out to dinner, we take walks, we go to festivals, and he’s just an amazing person. It means so much to have someone who cares.